GNAO1 is a genetic mutation associated with a range of neurological disorders, primarily characterised by movement disorders and/or epilepsy. 2025 estimates of those diagnosed with GNAO1 are:
- 450+ Globally
- 15+ Australia and New Zealand
Overview
Our Purpose
We are parents and carers of young people with GNAO1 helping to share the knowledge with others.
In the absence of a dedicated GNAO1 support group in our region, we have set this site up to:
- Direct viewers to sites providing the GNAO1 information
- Provide local contact points in the Australian and New Zealand
- Provide links to other sites that we consider relevant
- Add details for current and past GNAO1-related conferences
We are not a foundation or charity and will not collect or keep any personal information.
In effect, this is a sign-post website, that may develop over time.
FAQ
Here are the questions that we often receive:
- What is the best source of medical information on the GNAO1 mutation and its effects – The Bow Foundation
- What is the best way to connect with other families with young people with GNAO1 – Join the GNAO1 Facebook groups listed below.
Conferences and other events
Here is a list of the most recent and future events for the GNAO1 community:
- 2026 Global Conference (USA) – TBA
- 2025 European Conference (Cologne) – June
- 2024 USA Conference (Boston) – June
Links
These are the links we consider most important, we will add more as we find them:
- The Bow Foundation (USA)
- GNAO1 (Germany)
- Famiglie GNAO1 (Italy)
- Stichting GNAO1 (Netherlands)
- GNAO1 ESPAÑA (Spain)
Facebook:
Contact us
If you would like to know more, please email us:
GNAO1-ANZ.org 